tag:blogger.com,1999:blog-590688824130380762.post5721350811535727812..comments2023-10-10T04:17:32.917-07:00Comments on Sam and Lars: Cystinosis Research Foundation Day of Hope 2019mildredhttp://www.blogger.com/profile/02034924909970073272noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-590688824130380762.post-89475273648442003682019-04-10T18:22:46.930-07:002019-04-10T18:22:46.930-07:00Thanks for such a readable and digestible account ...Thanks for such a readable and digestible account of the conference. My granddaughter, Ellie, was diagnosed with Cystinosis in July 2016, just after her 1st birthday. I am working with Cystinosis Foundation UK and will share this blog post with my colleagues. Thanks again, Will.Willhttps://www.blogger.com/profile/03396165239818758561noreply@blogger.com