tag:blogger.com,1999:blog-590688824130380762.post6358953229885119139..comments2023-10-10T04:17:32.917-07:00Comments on Sam and Lars: CRF Day of Hope 2016mildredhttp://www.blogger.com/profile/02034924909970073272noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-590688824130380762.post-66490759343427999802016-05-21T16:44:30.312-07:002016-05-21T16:44:30.312-07:00Love these posts. Love that there is this wonderfu...Love these posts. Love that there is this wonderful community and incredible support and all these great things coming out of something that is not so great.<br />Love you guys!!! Anonymoushttps://www.blogger.com/profile/17812853157220658134noreply@blogger.comtag:blogger.com,1999:blog-590688824130380762.post-92120952537640893362016-04-12T10:32:36.822-07:002016-04-12T10:32:36.822-07:00Thank you for this excellent synopsis of the confe...Thank you for this excellent synopsis of the conference for those of us who could not be there! I am very appreciative. The phosphorus/calcium binding is something that those on dialysis will know well (and is used to their benefit--while on dialysis I was taking 5-8 TUMS to eliminate the excess of phosphorus), but I am glad to see that this information is becoming more widespread among those with Fanconi, where the bind can be so problematic.<br /><br />Also very interested in Dr. Leonard's findings (as a participant in that study). I was told my bone density was great, but this has prompted me to reach out to her for a more individual report. Interestingly, I do not consume water, so presumably fluoride would not be a concern--but I have reached out to my doctor to have this checked.<br /><br />Dr. Cherqui's research is exciting, as always. I am sure that the slow pace of FDA approval can be frustrating, but I am grateful and confident that all the t's are being crossed and all the i's are being dotted and once the clinical trial begins, it will reveal its incredible as-of-yet-unrealized-in-humans potential.<br /><br />Thank you again--your summaries are always well presented and never dumbed down. You truly have a gift for conveying this information. Anonymoushttps://www.blogger.com/profile/09343331698160112848noreply@blogger.com