Sam Meets Hank

On Friday we had the pleasure of a visit from the Sturgis family. Brian and Tricia Sturgis are from Sandpoint, Idaho, and they have a four-year-old, Henry, who also has cystinosis. Ashton got in touch with them by e-mail, and they let us know they were going to be in Utah this weekend visiting some friends. We were stoked to have them over, especially to meet another family who has gone through and is going through the same situation. It was also exciting to see that Sam can still turn out to be a pretty normal kid.



They brought Sam a stuffed lion named Roarbert, which he loves. Sam and Henry took to each other like long lost brothers, and they played all night long. It was great to ask the Sturgis family questions about their experiences, and they gave us very encouraging advice. Even though we were complete strangers when they came, we felt a strong kinship with them before they left. Sam can't wait to see Henry again!



We also purchased a scale over the weekend so we can weigh Sam more often. For some reason he really likes sitting in the scale, and he gets mad if you try to take him out. This week he weighed in at 16 lbs 7 oz. I think most of the weight is going to his face.