Tuesday, April 21, 2015

Cystinosis Research Foundation 2015 Movie


CRF 2015 from Nancy Stack on Vimeo.


This year the Cystinosis Research Foundation made a short film about our family for the 2015 Natalie's Wish event.  The filmographer, Lars Wanberg, spent a week with our family back in January.  The film talks about living with cystinosis and the amazing research the CRF is funding to make life better for our boys and every person with cystinosis.  Take a look!  


3 comments:

  1. I don't know why I'm just seeing this now. But talk about amazing! I already knew you guys were amazing. And that cystinosis sucks. And this video just reaffirms all of that..! You guys are always in our prayers. We love you!!!

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