Thursday, April 26, 2012

elmo and sam

we made this movie after watching "being elmo."  turns out it's hard to make movies with two-year-olds, but he did pretty well.

Sunday, April 22, 2012

Keepin' The Blog Alive

We're so sad that we could not make it to the CRF conference in Newport, CA this year.  Sam has grown so much since we were there last year.  One of Sam's nephrologist's was kind to let us know that the CRF announced the okay for the first bone marrow transplant trial.  This has come sooner than I thought.  Yay!!!  Also,  I hear the CRF raised $1.75 million last night.  All funds go towards medical research.  Thank you CRF!

On a sadder note...  Annie or "baby dog" is missing.  Any information that can lead to her whereabouts will be greatly appreciated.  This too is HUGE for Sam.  Thank you.

Friday, April 6, 2012

Our desktop is dead and our laptop has no more space

So these photos are from weeks ago.  As soon as we can get photos off my camera we will show you our/Sam's new toys. 

Samuel discovered the storage space where all his g-tube extensions are kept and decided to link a bunch together.  He's pretty good at figuring out how to connect and disconnect his tubes now.

Sam refuses to give up his crib for a big boy bed.  

Henry and Sam had fun pulling ALL the leaves off this tree.

This is a picture of me.  I helped give myself the arms but Sam made sure I was wearing one shoe.

Sam is moving on to chapter books.  We finished The Tale of Despereaux in four nights.