Saturday, November 2, 2013

I like Farmington Bay and YOU can too... but you better hurry because UDOT wants to build a freeway through it.


One of our favorite places to visit as a family is the Farmington Bay wildlife refuge.  We're a birding family.  We are super duper nerds.  Last week we saw a family of foxes, two snakes, blue herons, some unidentifiable birds that looked like dinosaurs, a pelican, muskrats, baby geese, etc...  We loved every minute of it.










I like Farmington Bay and YOU can too... but you better hurry because UDOT wants to build a freeway through it.


One of our favorite places to visit as a family is the Farmington Bay wildlife refuge.  We're a birding family.  We are super duper nerds.  Last week we saw a family of foxes, two snakes, blue herons, some unidentifiable birds that looked like dinosaurs, a pelican, muskrats, baby geese, etc...  We loved every minute of it.










Thursday, October 31, 2013

Halloween 2013


 Introducing Lars, a.k.a. Matt Foley, a.k.a. The Motivational Speaker, a.k.a. Chris Farley


 He's really getting into his role right here.

and Ninja boy!

 I've always made costumes in the past but this year we couldn't resist a Costco deal.  I'm converted.

Sunday, September 8, 2013

Sam's Eye Drop Chart


If we ever need to motivate Sam to take his medications, this is how it's done.  He's really good about it now but in the beginning we had to make it fun.   For each BINGO, a reward can be given.


Tuesday, August 13, 2013

how to give procysbi with a g-tube


Here is a quick movie we made to show how we give Sam Procysbi, the new form of cysteamine.
Sam takes four large pills (75mg) and one small pill (25mg)

Tuesday, July 16, 2013

every boy needs a tree house...

Sam and I frequently take "nature walks" so we can find rocks and sticks (for sword fights, of course).  Sam filled a bucket with sticks so I thought it would be fun to make something out of it... something that is not meant to wound another person.  Sam has been asking to build a tree house for weeks but we don't have a tree.  We built this instead.  This should hold him over for a few years.
And here is Lars.  Sigh.  He's such a good baby.  He is learning how to spit out his medications though.   Zut!