Thursday, November 8, 2012

Lars Overload & Test Results


Lars's cystine test results are back from UCSD.  Anything under 1.0 is good so we were happy to hear that his cystine level is 0.55.  We were thinking his cystagon dosage would need to be increased due to his rapid growth but it looks like it's working just fine.  He tolerates the drug much better than Sam ever did.  Although a couple of days ago, I did have to give it to him three times within thirty minutes because he kept spitting it up.  This was a reoccurring pattern with Sam when he was on cystagon.  I'm so grateful Sam can be on RP103.


Lars slept from 9 pm to 7 am last night.  He slept right through the 3 am cystagon dosage.  Tioooonkk! 

Tuesday, November 6, 2012

I voted for PINK!


Sam and Lars went along with me to vote today.  Right before I voted Sam looked at me and asked, "Mom, you voting for pink?"  Totally.



Tuesday, October 23, 2012

This is Halloween


 Decorating for the holidays is much more fun with kids.  Sam was bursting with excitement and bossiness this year.  We made monsters for our windows, which he was really happy about until he saw that I gave the monster three eyes.  After the meltdown he was able to communicate to me that he really wanted the monster to have only one eye... so we made two monsters with one eye each.  Next, Sam requested ghosts for our front porch.  Halloween decorating has never been more fun... or exhausting ;)


For those of you who are interested, this monster is named Jason.



Sam likes keeping the blinds shut.  Everytime we enter the living room he screams, "Ahhhhh Monsters!!"



The Halloween village that I saved from the dumpster.

 I replaced all of our square framed photos with pictures from Edward Gorey's The Gashlycrumb Tinies: A Very Gorey Alphabet Book.  You'll like it if you have a twisted sense of humor.




Our monsters cast spooky shadows everywhere.

If you're in the hood, come trick-or-treat at our place... unless you're too scared Brewhahahahahahahah!!!!!


Friday, October 19, 2012

Halloween Happenings



Pumpkin Decorating



Cookie eating



Donuts on a string - ing



 Craft making



Story telling